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This is a unique guide for women dealing with the difficulties of multiple sclerosis. After she was diagnosed with Multiple Sclerosis in 1976, author Judith Lynn Nichols realized that people suffering from chronic illness fare better when they share experiences with people fighting the same disease. While researching MS on the Internet, she connected with a group of women fighting to live with MS. The group quickly became each woman's support network, and, in the daily emails compiled in this book, they offered each other wisdom and humor about everything this disorder affects: diagnosis, employment, spirituality, family reactions, sexuality, pain control, depression, and more.
- Sales Rank: #1503083 in Books
- Brand: Brand: Hunter House
- Published on: 1999-01-21
- Original language: English
- Number of items: 1
- Dimensions: 8.30" h x .72" w x 5.80" l, .88 pounds
- Binding: Paperback
- 256 pages
- Used Book in Good Condition
From Library Journal
The author, herself a victim of multiple sclerosis (MS) for over 30 years, uses a compilation of E-mail chats to relate 23 women's experiences with MS. The use of various electronic media has provided these women, who sometimes suffer isolation as a result of their disability, "a way to `leave' [their] everyday surroundings and seek out a safe place where [they] can talk about [their] ups and downs with others who are going through the same experiences." The author states that very little medical information is given and that "all the experiences are shared in a conversational context, and are not intended to be medical advice." Although trite at times, this approach to a discussion of life with MS is more open and appealing and less frightening than Ellen MacFarlane's Legwork: An Inspiring Journey Through Chronic Illness (LJ 9/15/94). Recommended for all general collections and caregivers and physicians involved with MS patients.AMary J. Nickum, Bozeman, MT
Copyright 1999 Reed Business Information, Inc.
From Kirkus Reviews
Twenty-three women with multiple sclerosis share their e-mail discussions; the result is a ready-made support group for others with the disease that offers plenty of practical tips for day-to-day coping. Nichols (a former reporter and freelance writer) has had MS for over 30 years; she introduces the other women in the group by age and circumstances (medical and otherwise): the range is wide enough so that readers will easily find experiences here that speak to their own conditions. Chapters are loosely organized around guiding themes, but among the big questions covered here are mobility, work, family issues, sex, pain, depression, bowel and bladder control, and spirituality. Medical information is reliable as far as it goes, but much more valuable are pointers on getting good medical care, coupled with advice on all the subjects that either won't come up or wont be adequately covered in a physician's office. Nichols and company are particularly helpful in dealing with the uncertainty surrounding diagnosis (MS is notoriously hard to pin down) and the resulting emotional roller coaster. At the time of Nichols's own diagnosis, her priest visited her in the hospital to tell her he was sorry she had MS, but ``it's your own fault for assuming that you know more than God about what's best for you''. Nichols and her friends have stood up under that kind of assault, as well as the trials MS has hurled their way. Their strength and their practical outlook can help others cope. -- Copyright ©1999, Kirkus Associates, LP. All rights reserved.
Review
"The book is a validation of experience for those who have been in support groups, an invitation to those who have not yet done so, and a celebration of the wonder and pleasure that these particular women take in having found each other." -- Inside MS (Inside MS 2010-05-03)
Most helpful customer reviews
6 of 6 people found the following review helpful.
Welcome to my life!!!
By Lucinda A. Montuori
Having lived with M.S. for over 20 years, I've read everything I could get my hands on. Nothing I read reached me like Women Living with Multiple Sclerosis. I loved it. Ms. Nichols and her "froup" members made me feel so welcome, so understood, so OK about myself. The book was so unabashedly frank, so helpful, and so very on target that I bought copies for two women friends with M.S., and gave my book to my mother and several other friends to read, just so they could see what it's like being ME, in layperson's terms, with no clinical mumbojumbo. This book is fabulous! Every woman with a diagnosis of M.S. - and all those who love her - should read this book. We really are all in this together, and there is so much for us to learn and share.
16 of 20 people found the following review helpful.
not for younger women
By Sarah Rizzuto
As a recently diagnosed 28-yr.old, this book depressed me more than informed or enlightened me. The women in the author's online circle are mostly 40-50 yrs. old, and while they have years of experiencing problems with MS, much of their info is outdated, as they were diagnosed, or not diagnosed with outdated methods, such as before the MRI came about, etc., whereas I got a diagnosis within a week or two after my first onset of an episode with the slew of testing at a wonderful clinic. Also, their experiences or episodes can be treated today, though they perhaps couldn't be treated 20 years ago. My problems are under control through the treatments available today, but reading these stories made it sound like I was in for an intolerable haul. I would not recommend this book to a younger (
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